Military Special Needs Network

Proudly Supporting all Military Families with a Special Needs Dependent

Down Syndrome Awareness

This bonus feature of Fridays with Friends is from Lexi over at  She agreed to share Abby with us for the afternoon. Thanks, Lexi! 

I pull my two year old daughter from her car seat. She reaches out and hugs my neck for a second, then wiggles herself to her preferred position on my left hip. She fits comfortably there, almost like a part of me. We walk into the store, and people do double takes as we walk by.

This happens everywhere.  While I’d love to think it was because of her cute little pig tails or her infectious smile- most of the time the double take is because Abby has Down syndrome.  A look of recognition crosses their faces and most of the time, people gravitate to her. They want to tell her she’s beautiful and act like I’m some superhero because of the sidekick I wear on my hip.

There are times though, the awareness crosses over the strangers face, and it melts into pity. The Look of Pity is the worst look. I used to hide from it. I used to cry myself to sleep because of it. I did not want people to pity me. I did not want people to think that Abby was anything less than any of my other kids who had once occupied that same place on my hip.  I tried through my blog, through Facebook, etc, to show the world that Abby was just as good as everyone else. I wanted people to use “person first” language because I thought it would change the way they looked at my daughter. I spun my wheels until I had no tread left.

The beautiful,       amazing Abby

I was burnt out. None of that helped me to change how I felt about the Look of Pity. Until one day, I confronted it. I got that look from a lady at the grocery store and said, “Say hi, Abby!” and Abby smiled and waved.  The women’s face went from pity to delight. She talked to Abby for a second, and we both walked away different people than we had before Abby had changed us.

I want people to know the facts about Down syndrome. I want people to know that it’s not what they think it is. I want those whose immediate reaction to my daughter is pity to know that there is nothing to pity here. It’s hard, sure, but it’s beautiful. Down syndrome has added a richness and depth to my life I didn’t know was possible. I learn from Abby every single day.

And I hope others learn from her, too.  I don’t raise my Down Syndrome Awareness banner as high as I have in past Octobers, because I feel like I can promote awareness every single day of the year. I can allow Abby to just be herself. That will do enough all on its own.  Because with every person she comes in contact with, they are better for it.

I don’t need to talk about Down Syndrome Awareness as much anymore. I carry my Down Syndrome Awareness on my hip.

Lexi blogs at where she deftly and humorously shares her thoughts on raising four kiddos, one with autism, one with Down Syndrome, all beautiful, loving and very snarky! 

Comments, discussion and insight always welcome!

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Isn't That Marvelous?

It's serious. It's sarcastic. It's sweet. It's sincere.

TRICARE Overseas Philippines

A site to discuss and learn about TRICARE Philippines Policies and Issues that are often times implemented in secret by the Defense Health Agency (DHA). Policies that result in payments at about 7.7% and 3.8% of what they should be or $328 per under 65 person instead of the expected $4,261 & $328 per over 65 person instead of the expected $8,650.

Seasoned with Love

words and recipes from my kitchen to yours


LIFESTYLE - by Esther Herrero

Being The Bergerts

Vet tech student. Student Naval Flight Officer. Professional napping dog.


finding contentment in the unexpected


Musings from an unsuspecting navy wife


inken thought

Ketchup With a Side of Autism

This site is about the ups and downs of life and autism.

OMazing Kids AAC Consulting

Angela Moorad, MS, CCC-SLP. Over 33 years experience in AAC. OMazing Kids AAC and app consulting. Creator of several AAC Feature Matching resources ( Includes info about unique features to support Gestalt Language Processors

The Journey of a Thousand Sticks

Homeschooling, gardening, parenting, special needs, Buddhism, living, drinking, eating and loving.

Seth Adam Smith

★ Faith ★ Family ★ Freedom ★ Forward ★

Taking Baby{food}Steps... a healthier, happier Family!


Smart and surprising

Unstrange Mind

Remapping My World

%d bloggers like this: