This is Aubrey. She is five years old and is the big sister to Alex. From the moment we told her she was going to be a big sister, she was thrilled. She met her brother through the window of the hospital nursery the morning after he was born. She was upset that she couldn’t hold him and was scared because of the IV and oxygen he was on. As the true, complex nature of his condition came to light, we were transferred to the Children’s Hospital of Pittsburgh. It was nearly two weeks before she would see her baby brother again. The first time she peered at him over the rail of his bed in the NICU, she smiled and said “Hi brother”. She asked a lot of questions and was very worried about Alex. She talked to him and sang songs to him. When we were finally discharged to come home Aubrey told me it was the best day of her life! She is kind, supportive, and helpful to her brother. She is with him during all his therapies and loves to help with his exercises, she does things to make him laugh, gives him her toys, and most of all tells him he is the best little brother ever and that she will always take care of him.