Marriage, Military & Special Needs: Til Diagnosis Do Us Part?
My husband and I have been married 51.01 Kardashians (that is equal to 10 year for those of you that are not pop culture savvy). That is quite the feat … Continue reading
Diagnosis Wanted
Wednesday was a day I had dreamed about for months; it was the day the geneticist was going to solve our medical mystery. After 4 years and 13 specialists, we … Continue reading
June is Hydranencephaly Awareness Month
On June 30, 2008, a brown-eyed little man was born that wasn’t supposed to be. He had been given a grim prognosis at around 22 weeks of life within the womb, … Continue reading
Did She Hear Me?
On the evening before your high school graduation, I sit here in a moment of panic. My beautiful baby girl is off to face the world. So full of hope … Continue reading
The Best Summer Ever?
While the teachers and students are celebrating the end of the school year, I’m terrified. What am I going to do with the girls all summer long? How will I … Continue reading
Special Needs Parents’ Guide to Surviving Summer
Now that Memorial Day, the “official” start to summer, is behind us, we are free to being planning our summer vacations and get togethers. Some of us may try Disney … Continue reading