Proudly Supporting all Military Families with a Special Needs Dependent
Until it didn’t.
Less than a year after surgery, memory loss became a huge problem. It became like living with Dori from Finding Nemo. Questions were asked repeatedly. Even memories that should be ingrained in her, like where her bedroom was, were lost in Josie. Her memory was just the start of the dominos. After the memory problems started, executive function problems, spatial awareness, and inability to cross the midline soon followed. Her drawings, that shortly after surgery took shape and meaning, turned into Piccaso-esque drawings with no hint as to what they were.
Our team of doctors were at a loss. Once again she was an anomaly. She was something they had never seen before and passed the buck to someone else. Josie ended up being diagnosed with DD-NOS (Developmental Disability- Not Otherwise Specified). While this diagnosis meant that I wasn’t crazy (well, not when it came to this), that was it. The diagnosis didn’t come with understanding, or instructions on how to help her. It was just letters to add to our diagnosis alphabet soup.
This is where the internet worked its magic and lead me to other parents of Chiari kids, kids like Josie. On days when I have to answer the same question 15 times in an hour or I am exhausted from spelling out every step of what should be a simple process, I can turn to those parents who understand. While it isn’t a magical solution to Josie’s challenges, it is nice to know that she isn’t alone. That I am not alone.
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A site to discuss and learn about TRICARE Philippines Policies and Issues that are often times implemented in secret by the Defense Health Agency (DHA). Policies that result in payments at about 7.7% and 3.8% of what they should be or $328 per under 65 person instead of the expected $4,261 & $328 per over 65 person instead of the expected $8,650.
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